Rohan was born on Tuesday 10th December 2003. He was born 6 weeks prematurely and weighed 3lb15.5oz. He did well and had little issues until he started school and we started to notice his lethergy, he was referred the paediatricians and started having tests. Finally in March 2013 he was diagnosed with a rare Mitochondrial condition called MELAS. This stands for Myopathy, encephalopathy, lactic acidosis and stroke like episodes. Rohan had most of these conditions and was managing them and still attending school as a normal little boy until October 2013 when he was dealt the hardest blow of his first stroke like episode. Following this he had an EVD and brain surgery to release the pressure and he fought hard to recover. Rohan was always a fighter and did incredibly well to recover his mobility, and speech, he lost his sight in December 2013 and then he was knocked again by another stroke like episode at Christmas 2013. Again Rohan fought back and at Easter 2013 he went back to school. He loved being back in school with his friends and every day asked whether it was school and had a beaming smile when he could go in.
He never complained about any of his complications or losing his sight. In May 2014 he was the star of mine and his step dads wedding dancing during the speechs and getting a standing ovation.
In September 2014, he suffered another set back and strokes and finally lost his fight on Saturday 4th October 2014, aged 10 years old. He was comfortable and with both his mum and dad.
We feel his loss every day, his sister Yazmin misses him every day. As a caring, loving little boy he is a massive loss to this world. We feel that raising money in any way we can would be what Rohan would want us to do and this woud hopefully go towards finding a cure for some of these terrible illnesses and conditions.
|£10.00||Petko||04/10/2018||You are an amazing person, Ash and I am sure your son would’ve been an amazing person too. Thank you for everything!|
|£40.00||Val Stubbins||06/09/2018||For sale of cards - thank you Margaret and Joyce|
|£10.00||Andrea||22/02/2018||Great work x|
|£171.00||Party Parlour||09/01/2018||A donation raised from Santa's Grotto in Colchester xx|
|£11.00||Sharon||30/12/2017||For the Lovely Xmas Decorations & Gifts|
|£20.00||Lucy Wilson||10/10/2017||For superheroes everywhere - keep fighting, keep smiling xx|
|£25.00||Dayle carvell||03/10/2017||Sent with all my love for an amazing thing your doing xxx|
|£5.00||Nikki and Byron||25/07/2017|
|£10.00||Sharons Mum & Billy||17/03/2017||For Rohan xx|
|£10.00||Emma Holder||17/03/2017||In loving memory. xx|
|£15.00||The M-Ps||01/07/2016||For a special boy who is loved and missed everyday...will wear our paddington badges for you Rohan xxx|
|£25.00||Alana and Derek||06/12/2015||We are friend's of Rohan's Aunty Clare and Uncle David and we know through them what a very special little boy Rohan was. Our thoughts are with you all xxx|
|£5.00||Claire Wildman||05/12/2015||What a wonderful thing to do in memory of your amazing son!|
|£50.00||Pete Maycroft||04/12/2015||A lovely young man, very much loved and missed by his family. Thoughts and prayers are with you all|
|Total raised online:||£10,007.90|
|Total raised offline:||£2,033.48|
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